I’m zooming around in fast-forward (I imagine 99.9% of you can relate) so I can head out and get a seat in the dinky visitors’ stands for what I hope will be an exciting game, so on to the promised updates of some of ‘our’ special families!
SMA (spinal muscular atrophy) families:
The Mastin twins are BOTH home!!!
Daddy Neil started his latest update with this ‘stereo twins in text’ (which he could likely send to Lady Googoo Gaga…):
Waah. / Unh.
Waah. / Unnhhh.
Nom. Nom. Nom. / Waaah.
Coocoocoo. / Fwp.Fwp.Fwp.
Unnnh.
Neil promises new pictures soon (in their spare time – hahahahahahahaha), but you can catch up on how they’re all doing on the update. There’s a ‘help’ calendar set up now for those who might be willing and able to help (Raleigh, NC, area), so head over to the update and see how you can help this sweet family! We know their SMA angel, Ollie, is doing what he can 
* * * * *
EB (Epidermolysis Bullosa) families:
1. & 2. Daylon and Bella continue to have significant roller coaster moments every day after their bone marrow transplants (after last night’s posts, Day 71 for Daylon and Day 63 for Bella), so please keep the prayers and good thoughts headed their way! A huge step forward came for Daylon’s folks when the baby they knew seemed to return
Best day yet – return of the Daylon SMILE!
3. Tripp has been doing mostly well. Courtney, his mom, updated with a LOT of pictures and some short videos that are hilarious! What a little entertainer Tripp is
4. Jonah‘s had some rough days lately, but Patrice managed to remember the camera. She got the trademark Mr. J smile:
and the trademark Mr. J fake cry
* * * * *
Acccckkkkkk!!! Just looked at the clock and need to get busy elsewhere (where DOES the time go???). More updates tomorrow….
Meanwhile, happy Friday!
Lucy
Yep, a thingle thnippet tonight because I’ve spent the entire day working on old tax papers, including filing a gazillion receipts for 2009.
That’s right. Today I finally finished filing receipts for 2009. That would be LAST year. Sheesh.
The thnippet is that ‘our’ JV team won what Randy said was possibly THE most exciting JV game he’d ever seen, pulling ahead in the last 40 seconds and keeping the opponent from succeeding on any of their remaining 4 passes.
I’m hoping this will spark the varsity team into some serious action tomorrow night… when we play a big rival that just barely missed the state championship last year.
Meanwhile, after booting the hairballs in and out all day long, I’ve just booted Sami out for the last time and am calling it quits.
More about our special families tomorrow.
Promise.
Lucy
It is still September, isn’t it?
Good, and whew.
Congratulations to Teri, grandmother to Charleston (SMA, Type 1), for winning Tracy’s Story – The Other Side of the Coin! It went off today, Teri; how’s that for luck service?
Thanks to all who participated in all the book giveaways! We’ll have more giveaways this month
For me, September brings a feeling of fall, at least here in Mountainbillyland, and with it a natural sense of appreciation for life in general.
I didn’t have to think at all for the post tonight. If don’t know about Stephanie Nielson (NieNie Dialogues), rush right over to her post today – 3 years of change. If you aren’t already appreciative of something – anything – you will be after you read it (it’s short). Stephanie and her husband survived a horrendous private plane crash three years ago that killed their friend. By all rights, it should have killed them, too, but it didn’t. And what a testament to faith and determination Stephanie and ‘Mr. Nielson’ have been since then.
More tomorrow about some of ‘our’ special families…
Off to appreciate,
Lucy
WHAT HAPPENED TO AUGUST???
I don’t know, but I do know that Ethel and Kevin are wondering the same thing, thanks to a dire lack of sleep these past few weeks. Please pray that they find a BiPAP fix soon!!!
Don’t forget the easy ways to enter the giveaway of Tracy’s Story – The Other Side of the Coin! The drawing will be at 8am tomorrow. September 1.
And in utterly useless, incredibly stupid news:
Dolphins Player Loses $50G Diamond Earring During Practice
I can’t even think after that.
Lucy
